{"id":7772,"date":"2025-06-28T21:57:52","date_gmt":"2025-06-28T21:57:52","guid":{"rendered":"https:\/\/ijssass.com\/journal\/when-parents-refuse-a-sick-teenager-the-right-to-give-informed-consent-the-nurses-role\/"},"modified":"2025-06-29T05:04:42","modified_gmt":"2025-06-29T05:04:42","slug":"when-parents-refuse-a-sick-teenager-the-right-to-give-informed-consent-the-nurses-role","status":"publish","type":"post","link":"https:\/\/ijssass.com\/journal\/when-parents-refuse-a-sick-teenager-the-right-to-give-informed-consent-the-nurses-role\/","title":{"rendered":"When parents refuse a sick teenager the right to give informed consent: the nurse\u2019s role"},"content":{"rendered":"

This article was originally published as: When parents refuse a sick teenager the right to give informed consent: the nurse\u2019s role<\/strong><\/p>\n

Original Article Link: Read Original Article<\/a><\/p>\n

Download PDF: Click Here to Download PDF<\/a><\/p>\n

Abstract<\/h2>\n

Objective: To outline the case for child patients who are minors to be allowed to participate in the medical decision\u2011making process and make significant choices.
\nSetting: The paediatric oncology department of a major teaching hospital in Israel.
\nSubject: A 15\u2011year\u2011old boy from a strictly religious Jewish family was diagnosed with acute myeloblastic leukaemia. Relying on their rabbi\u2019s advice, the parents agreed to a chemotherapy protocol but refused an immediate bone\u2011marrow transplant using a central vein access device to ease suffering and increase safety and rejected extracting and freezing some of the boy\u2019s sperm (the chemotherapy would cause sterility). They refused to let the boy take part in the discussions with the medical staff, or even to know he had cancer.
\nPrimary Argument: The authors consider that two principles are decisive \u2011 the patient\u2019s best interest and informed consent. A teenager who has emotional maturity and understanding is entitled to a doctor\u2011patient relationship based on mutual trust; on their right to know; and their capacity for autonomy (to be judged in light of the severity of the treatment required). The nurse\u2019s role is to bring the parents to acknowledge their child\u2019s rights; to identify where information is needed; to help the parents express their needs and wishes to the medical staff; to act as case manager and patient advocate; and coordinate between all care\u2011givers. An ethical\u2011problem\u2011solving worksheet is offered to nurses.
\nConclusions: Nurses must be specifically trained for this mediating role and be appropriately represented on local ethics committees. Systematic decision\u2011making protocols are needed.<\/p>\n

Authors<\/h2>\n
    \n
  • Nili Tabak<\/li>\n
  • Miriam Rozen Zvi<\/li>\n<\/ul>\n

    Keywords<\/h2>\n

    informed, consent, best interest, children’s rights, parents rights, nursing roles<\/p>\n

    References<\/h2>\n

    References not available for this article.<\/p>\n","protected":false},"excerpt":{"rendered":"

    This article was originally published as: When parents refuse a sick teenager the right to give informed consent: the nurse\u2019s…<\/p>\n","protected":false},"author":21,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[124],"tags":[5143,5144,4813,5142,5146,5145],"class_list":["post-7772","post","type-post","status-publish","format-standard","hentry","category-articles","tag-best-interest","tag-childrens-rights","tag-consent","tag-informed","tag-nursing-roles","tag-parents-rights","wpcat-124-id"],"yoast_head":"\nWhen parents refuse a sick teenager the right to give informed consent: the nurse\u2019s role - IJSSASS Repository<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ijssass.com\/journal\/when-parents-refuse-a-sick-teenager-the-right-to-give-informed-consent-the-nurses-role\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"When parents refuse a sick teenager the right to give informed consent: the nurse\u2019s role - 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