{"id":7458,"date":"2025-06-28T18:25:56","date_gmt":"2025-06-28T18:25:56","guid":{"rendered":"https:\/\/ijssass.com\/journal\/the-role-of-specialist-nurses-in-cardiac-genetics-the-victorian-experience-supporting-partnerships-in-care\/"},"modified":"2025-06-29T05:07:09","modified_gmt":"2025-06-29T05:07:09","slug":"the-role-of-specialist-nurses-in-cardiac-genetics-the-victorian-experience-supporting-partnerships-in-care","status":"publish","type":"post","link":"https:\/\/ijssass.com\/journal\/the-role-of-specialist-nurses-in-cardiac-genetics-the-victorian-experience-supporting-partnerships-in-care\/","title":{"rendered":"The role of specialist nurses in cardiac genetics &#8211; the Victorian experience: supporting partnerships in care"},"content":{"rendered":"<p>This article was originally published as: <strong>The role of specialist nurses in cardiac genetics &#8211; the Victorian experience: supporting partnerships in care<\/strong><\/p>\n<p>Original Article Link: <a href='https:\/\/www.ajan.com.au\/index.php\/AJAN\/article\/view\/1544' target='_blank' rel='noopener'>Read Original Article<\/a><\/p>\n<p>Download PDF: <a href='https:\/\/www.ajan.com.au\/index.php\/AJAN\/article\/download\/1544\/278' target='_blank' rel='noopener'>Click Here to Download PDF<\/a><\/p>\n<h2>Abstract<\/h2>\n<p>Objective: In Victoria, Australia, a unique referral process exists for families who require investigation for possible inherited cardiac disease. This is spearheaded by a team of specialist nurses located at the Royal Children\u2019s Hospital Melbourne (RCH), the Royal Melbourne Hospital (RMH) and the Victorian Institute of Forensic Medicine (VIFM), who ensure that all potentially at-risk families are offered the opportunity for clinical assessment and consultation.<br \/>\nSetting: In Victoria, approximately 5,500 deaths are reported to the Coroner each year. Where there is a suspicion of a causative heritable cardiac condition, the surviving relatives are offered referral to a tertiary centre for assessment and screening.<br \/>\nSubjects: A specialist nurse employed by the VIFM is the focal point for forensic pathologists to flag families requiring referral. Concurrently, specialist nurses within the cardiac genetic services of RMH and RCH accept, review, triage and action these referrals. All three services work closely to create a seamless model of care, which is age appropriate and provides ease and equity of access to consistent care.<br \/>\nPrimary argument: The nurse specialists are a critical part of the multidisciplinary team, providing the first entry point into the hospital system. Their background experience encompasses intensive care and cardiology nursing. This is essential to the provision of professional and empathetic care in which families can approach the difficult issues surrounding post mortem consideration of a diagnosis.<br \/>\nConclusion: The Victorian nurse led system is an effective model, which could be trialled in other jurisdictions, and other disorders, where multidisciplinary care is required.<\/p>\n<h2>Authors<\/h2>\n<ul>\n<li>Tina Thompson<\/li>\n<li>Natalie Morgan<\/li>\n<li>Vanessa Connell<\/li>\n<li>Dominica Zentner<\/li>\n<li>Andrew Davis<\/li>\n<li>Andreas Pflaumer<\/li>\n<li>Noel Woodford<\/li>\n<li>Ingrid Winship<\/li>\n<\/ul>\n<h2>Keywords<\/h2>\n<p>paternerships, cardiac genetics, sudden unexplained death, screening: specialist nurse<\/p>\n<h2>References<\/h2>\n<p>References not available for this article.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This article was originally published as: The role of specialist nurses in cardiac genetics &#8211; the Victorian experience: supporting partnerships&#8230;<\/p>\n","protected":false},"author":21,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[124],"tags":[4552,4551,4554,4553],"class_list":["post-7458","post","type-post","status-publish","format-standard","hentry","category-articles","tag-cardiac-genetics","tag-paternerships","tag-screening-specialist-nurse","tag-sudden-unexplained-death","wpcat-124-id"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>The role of specialist nurses in cardiac genetics - the Victorian experience: supporting partnerships in care - IJSSASS Repository<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ijssass.com\/journal\/the-role-of-specialist-nurses-in-cardiac-genetics-the-victorian-experience-supporting-partnerships-in-care\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The role of specialist nurses in cardiac genetics - the Victorian experience: supporting partnerships in care - IJSSASS Repository\" \/>\n<meta property=\"og:description\" content=\"This article was originally published as: The role of specialist nurses in cardiac genetics &#8211; 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