{"id":7396,"date":"2025-06-28T18:05:08","date_gmt":"2025-06-28T18:05:08","guid":{"rendered":"https:\/\/ijssass.com\/journal\/no-one-said-he-was-dying-families-experiences-of-end-of-life-care-in-an-acute-setting\/"},"modified":"2025-06-29T05:07:52","modified_gmt":"2025-06-29T05:07:52","slug":"no-one-said-he-was-dying-families-experiences-of-end-of-life-care-in-an-acute-setting","status":"publish","type":"post","link":"https:\/\/ijssass.com\/journal\/no-one-said-he-was-dying-families-experiences-of-end-of-life-care-in-an-acute-setting\/","title":{"rendered":"No one said he was dying: families\u2019 experiences of end-of-life care in an acute setting"},"content":{"rendered":"

This article was originally published as: No one said he was dying: families\u2019 experiences of end-of-life care in an acute setting<\/strong><\/p>\n

Original Article Link: Read Original Article<\/a><\/p>\n

Download PDF: Click Here to Download PDF<\/a><\/p>\n

Abstract<\/h2>\n

Objective: To explore the family\u2019s experience of end-of-life care for their dying family member during the last few days of life in an acute rural hospital.
\nDesign: Interpretive design using qualitative methods, including 1:1 semi- structured interviews.
\nSetting: The study was undertaken in a large regional health service in Victoria.
\nSubjects: Twelve relatives who were next of kin of people who died between 1 January 2012 and 30 June 2013 in an acute ward at the health service agreed to participate in the study.
\nMain outcome measure: Families\u2019 perceptions of end-of-life care for their dying family member.
\nResults: Data analysis identified five themes that were grouped into two general dimensions \u2212 communication (guidance for family member\u2019s role in end of life care, the family\u2019s preparation for death, the dying experience) and care and support (the hospital care experience, follow-up after death).
\nConclusion: A lack of open and candid communication hindered family members\u2019 engagement in decision-making and involvement in their loved ones\u2019 last days of life. The absence of formal processes for end of life (EOL) care planning resulted in families being unprepared for what they perceived as their family member\u2019s \u2018sudden death\u2019.<\/p>\n

Authors<\/h2>\n
    \n
  • Jane Odgers<\/li>\n
  • Denise Fitzpatrick<\/li>\n
  • Wendy Penney<\/li>\n
  • Anna Wong Shee<\/li>\n<\/ul>\n

    Keywords<\/h2>\n

    death and dying, end-of-life care, communication, advanced directives, bereavement, rural nursing<\/p>\n

    References<\/h2>\n

    References not available for this article.<\/p>\n","protected":false},"excerpt":{"rendered":"

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