{"id":7275,"date":"2025-06-28T17:47:26","date_gmt":"2025-06-28T17:47:26","guid":{"rendered":"https:\/\/ijssass.com\/journal\/a-protracted-struggle-a-qualitative-blog-study-of-endometriosis-healthcare-experiences-in-sweden\/"},"modified":"2025-06-29T05:08:32","modified_gmt":"2025-06-29T05:08:32","slug":"a-protracted-struggle-a-qualitative-blog-study-of-endometriosis-healthcare-experiences-in-sweden","status":"publish","type":"post","link":"https:\/\/ijssass.com\/journal\/a-protracted-struggle-a-qualitative-blog-study-of-endometriosis-healthcare-experiences-in-sweden\/","title":{"rendered":"\u201cA protracted struggle\u201d \u2013 A qualitative blog study of endometriosis healthcare experiences in Sweden"},"content":{"rendered":"

This article was originally published as: \u201cA protracted struggle\u201d \u2013 A qualitative blog study of endometriosis healthcare experiences in Sweden<\/strong><\/p>\n

Original Article Link: Read Original Article<\/a><\/p>\n

Download PDF: Click Here to Download PDF<\/a><\/p>\n

Abstract<\/h2>\n

Objective: The aim of this study was to identify and describe endometriosis healthcare experiences based on affected individuals\u2019 blog posts. Background: Endometriosis is a chronic gynaecological disease that often has a negative effect on mental, physical, sexual and social health, resulting in lower quality of life. Endometriosis healthcare experiences have typically been described in terms of normalisation, trivialisation and a lack of knowledge from healthcare professionals. These experiences are often reported via individual interviews or focus group interviews. Studying internet blogs may contribute additional information that might not be disclosed during interviews. Therefore, observing and analysing content from blog posts may present an opportunity to gain additional understanding of how healthcare encounters can be experienced by individuals with endometriosis. Study design and methods: This is an inductive qualitative study based on blog posts. The blog posts were written in Swedish and posted online without passwords. Sixteen blogs written between 2008 and 2019 by people aged 22-34 were included. The bloggers had been diagnosed with endometriosis one to seven years prior to writing the blogs and lived all over Sweden. Data collection was performed in March 2019 using an online search engine. A combination of different research terms was used to find the blogs. After considering the blogs on the basis of inclusion and exclusion criteria, 12 blogs remained, and another four blogs were included via links from one of the blogs. The analysis was conducted using thematic analysis according to Braun and Clarke. Results: The results are presented under one main theme, \u201cA protracted struggle\u201d, and two subthemes, \u201cThe response plays a significant role\u201d and \u201cThe value of competence\u201d. The bloggers described their healthcare experiences as a long struggle including contact with a large number of different healthcare professionals (HCPs), where the response was significant for their physical and mental health. They emphasised the advantages of person-centredness, competence and continuity in the HCP contact. Conclusions and implications for practice: The results demonstrate that the journey through healthcare was experienced as a prolonged struggle, including normalisation, trivialisation and distrust. The results imply that more improvement work remains to be done within endometriosis healthcare. Taking patients\u2019 complaints seriously and providing prompt and effective investigations and treatment may lead to more positive healthcare experiences.
\nWhat is already known about the topic?<\/p>\n

Endometriosis healthcare experiences have typically been described in terms of normalisation, trivialisation and a lack of knowledge from healthcare professionals.
\nPrevious qualitative studies on the subject are interview studies, which may be influenced by the presence of researchers.<\/p>\n

What this paper adds:<\/p>\n

The care-seeking behaviours involved a wide range of strategies. The descriptions varied from extensive care-seeking from different doctors and clinics, to refraining from seeking care due to a fear of being treated badly.
\nThe wording used in the blogs was tougher and more unforgiving, and included mostly negative aspects compared to what has been presented in interview studies. This may be explained by the \u201cdiary-like\u201d characteristics of blogs and the free way of presenting narratives in a blog.<\/p>\n

Authors<\/h2>\n
    \n
  • Hanna Grundstr\u00f6m<\/li>\n
  • Hanna Danell<\/li>\n
  • Emma Sk\u00f6ld<\/li>\n
  • Siw Alehagen<\/li>\n<\/ul>\n

    Keywords<\/h2>\n

    endometriosis, blogs, qualitative analysis, healthcare encounter, thematic analysis<\/p>\n

    References<\/h2>\n

    References not available for this article.<\/p>\n","protected":false},"excerpt":{"rendered":"

    This article was originally published as: \u201cA protracted struggle\u201d \u2013 A qualitative blog study of endometriosis healthcare experiences in Sweden…<\/p>\n","protected":false},"author":21,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[124],"tags":[4225,4224,4227,4226,4228],"class_list":["post-7275","post","type-post","status-publish","format-standard","hentry","category-articles","tag-blogs","tag-endometriosis","tag-healthcare-encounter","tag-qualitative-analysis","tag-thematic-analysis","wpcat-124-id"],"yoast_head":"\n\u201cA protracted struggle\u201d \u2013 A qualitative blog study of endometriosis healthcare experiences in Sweden - IJSSASS Repository<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ijssass.com\/journal\/a-protracted-struggle-a-qualitative-blog-study-of-endometriosis-healthcare-experiences-in-sweden\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u201cA protracted struggle\u201d \u2013 A qualitative blog study of endometriosis healthcare experiences in Sweden - 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